Mackenzie M. (Twin) DOB 7/13/2012 Date of Surgery: 10/18/2012-Endoscopic Type of Cranio: Sagittal Craniosynostosis Our baby girl Mackenzie has what is called Craniosynostosis (Sagittal Sutures). It is a condition where her skull along the Sagittal suture (along the top of her head) has already fused together in utero. I believe this happened because she spent… read more
Maximus was born November 16, 2011 and I was so happy to have a son. Birth was normal on my end however; my husband said something was very different about his head during his arrival. He said it just didn’t look the same as when our daughter was born. I didn’t understand until much later… read more
Our daughter Ellee had metopic cranial synostosis, in addition to all her many other medical diagnoses. She had open heart surgery for pulmonary vein stenosis when she was just four months old. When she was fourteen months old, the time came for surgery on her cranial synostosis, and that was almost scarier than the open… read more
On May 9, 2012, we welcomed the most amazing little boy into our lives. Mark was born happy and healthy. With the exception of Mark being breech and having a two-vessel umbilical cord, the pregnancy was a normal one. At Mark’s 2 month visit, his pediatrician mentioned that his head was beginning to take on… read more
We were blessed with our precious baby Keegan James, who was born full term on his due date of 3/3/2012. Our hearts melted when we saw him. He was the sweetest baby with big beautiful eyes. We saw a colleague of our pediatrician at the 2 week visit, as our pediatrician was out of town,… read more
Hi, my name is Teresa and this is my story about my son Julian, diagnosed with Craniosynostosis in 2011. My husband John and I were blessed when our son Julian was born in March of 2011. Julian was born a week early (scheduled) due to my difficulty of sciatica on my left side from the… read more
Isaac’s Journey with Metopic Craniosynostosis can be read on this blog – http://shirey-family.blogspot.com/2011/06/isaacs-journey-and-gods-perfect-healing.html Below are all of my blog posts related to our journey with our son Isaac through his diagnosis of metopic craniosynostosis and the surgery that followed. We pray that you will find encouragement, advice, and hope through our walk and that our experience… read more
Jojo’s Cranio Adventure – Well my Jojo’s story is a little different than most Cranio stories I have read. We weren’t diagnosed until he was 4 ½ years old and it was kind of stumbled upon. Jojo was born 9/20/07, 6 weeks early via c-section (due to problems with my pelvis). He was healthy with… read more
When Timberleigh was born in June of 2011 everything was perfect. Her head was perfectly round and chubby cheeks and everything. When I took her in for her 1 month appointment I mentioned to the doctor that her head was looking like a football to me instead of being round and asked if that was… read more
Eisley King came into the world kicking and screaming on January 13th 2012. He was so tiny yet a very strong 6 lbs 2 oz. He was beautiful! Don’t remember a whole lot after that, they knocked me out so I wouldn’t feel anymore pain. The placenta was sent off for testing and found out… read more
Gavin was born October 2nd 2011. I had a completely normal pregnancy until 30 weeks. I had a normal check up where they found protein in my urine and they realized I had developed preeclampsia. I was admitted to the hospital on a Friday, then on Sunday morning my blood pressure shot up even higher and… read more
My husband was the first to notice the ridge on the back of Damian’s head. He was 1 month old and we asked his pediatrician about it because it seemed pretty prominent. The doctor said that it was probably normal and that he would look at it during the next appointment at 2 months. We… read more
