From day one James’ dad knew there was something not right about the shape of James’ head. The Midwifes, health visitors and myself said it was normal for their head to be a strange shape for the first few days but he didn’t agree and knew something wasn’t right. James happened to be very unsettled… read more
John & Andrew Kepler are identical twin boys born 10/6/09. The minute they were born we could tell them apart very easily. John’s head was much rounder, Andrew’s longer and more narrow. The doctors assured us from our first ultrasound at 14 weeks that they were identical twins. They just looked so different while in… read more
The day I found out that my beautiful son had Metopic Craniosynotosis and needed major cranio surgery, was the scariest day of my life. How could this be possible? My mom was with me because my husband was out of town. I had to make the dreaded call to my husband, who was on a… read more
Aleah was born a happy, healthy baby girl on July 10, 2010 at 8:43pm; exactly 34 years and 3 minutes after her father. At about 3 months, mommy and daddy noticed that her forehead was a little mis-shaped. We consulted her pediatrician and she noticed it as well. She said it was probably nothing that… read more
Braddack is our second born, he was born on November 11 2010, 11 days late. He was 9lbs 5oz an 21.5 inches, He looked perfect! At his 3 month check up, the doctor mentioned his head. We went to Children’s Cranio and facial 4/2011 where we met Dr. Lewis. She took one look at his… read more
Annabelle was diagnosed with metopic cranisynostosis at around 2 months of age. I am fairly certain that it had been fused since birth. Her pediatrician noticed her forehead at her 2 week checkup and said we would need to keep an eye on it. She was referred to a pediatric neurosurgeon at her 1 month… read more
It all started on September 8, 2010. I was induced at 10 a.m. and at 6:29 p.m. my baby boy, to be named Carson Matthew, was born at Methodist Women’s Hospital in Omaha, NE. He was born at 9 pounds 15 ounces, which I thought was totally and completely crazy, because I am pretty small… read more
When Aaden was born, we thought there was something not quite right about his head shape, but didn’t think too much of it–he was perfect to us! At his 6 month check up, our pediatrician noticed that his soft spot was closing. A few days later Aaden had a CT scan that confirmed that he… read more
