This is our story of our baby girl’s journey through Sagittal Synostosis: Our daughter was born July 28, 2010. She was beautiful and a perfect 8lbs 1oz. We named her Elise after my Great Great Great Grandma who came to America on a boat from Norway but that is another story for another time. At… read more
We found out we were pregnant on July 11, 2008! We were due March 9th, 2009. We had a high-risk pregnancy but the doctors kept saying everything is fine..the baby looks great! We found out we were having a boy on October 20th, 2008. We decided to name him Gavin Edward Gregory after my husband’s… read more
Matthew was born on March 27th 2011 weighing 8 pounds 14 ounces, 21 and 3/4 inches. My Dr. showed no concern over the ridge down Matthew’s forehead, as I had just given birth. At Matthew’s two week check up his doctor noticed the prominent forehead and told us we needed to keep an eye on… read more
September 2010 was the month we found out Mercedes had metopic synostosis, at the time it was mild no surgery required. We drove to St. Louis to see Doctor Woo. He told us not to worry it was a very mild case. We drove all the way home thinking “good, she was not having surgery.” … read more
On December 6th, 2010, at 12:42 pm, our sweet little boy was born. Just days before, we found out that Charlie was frank breech, so for the safety of him and myself, we had a cesarean section birth. Charlie was born as healthy as can be at 7 lbs, 11oz. My husband , Tommy,… read more
Up until Samantha was six months old, I didn’t give much thought to the abnormal shape of her head. But suddenly a foreign word crept into my vocabulary – craniosynostosis. It became a whirlwind of confusion and fear while I attempted to wrap my mind around what this meant for my baby girl. We lucked… read more
On Christmas Eve 2009 we welcomed our amazing Styles into the world. He was 3 weeks early because of pregnancy induced hypertension but was perfectly healthy. He was a happy, easy baby from the very beginning and continues to be that way now. Styles hit all of his milestones at appropriate times & other than… read more
That sweet, adorable, amazing little boy is my son Owen Hunter. He was born on September 21st, 2010. The day he was born, it was like the world made sense again. You see, 16 months before he was born I lost a daughter in my 5th month of my pregnancy. That day it was like… read more
Fiona was diagnosed with metopic craniosynostosis at 4 months old after me begging for a referral to a specialist from my family doctor. When Fiona was born it was very obvious when I look back that she had cranio, but the OB, the nurses and our family doctor told me that it was because she… read more
We were blessed with our 5th child, Mateo Tolentino Renteria Oct 21, 2010. I had always noticed that his head shape was different, but his Ped never listened to my concerns until his 6 month well check. He was sent for an x-ray and referred to Dr. Singh (CFS), she diagnosed Mateo with severe sagittal… read more
When Nolan was first born I noticed nothing he was a beautiful little baby boy, looks a lot like his big brother. At about 2 weeks old I noticed his temple on the right side of his head was more indented then the left. At his circ. follow up appointment I pointed out to the… read more
After having a wonderful boy and girl, our family was surprised to hear we were to be blessed with a new baby in August 2009. We couldn’t be happier, and everyone was super excited for us. Mr. Cole Dennis was born at 5:36 pm on April 29th 2010 at St. Luke’s here in the St.… read more
