Our story began on 7/13/2011 when our Princess Sydney Marie was born. We didn’t find out the sex of the baby this time around so we were thrilled to hear it was a girl since we had our son, Anthony. Sydney was perfect, except she had somewhat of a misshapen head but we were told… read more
My journey as a Cranio Mom began in the Plastics office at Children’s Hospital in Boston, MA. I thought that my seven-month-old son had a funny shaped head. One eye was higher than the other. A part of his head was flat in the front. From above he looked misshapen. My pediatrician told me he… read more
On April 30th 2011, my boyfriend and I found out that we were pregnant with our second child. During the whole pregnancy I had dealt with a few complications. Towards the end my OBGYN told me that our baby was frank breach and that I would have to have a c-section. On January 20th 2012,… read more
My daughter, Sara, was born a healthy and happy baby. She never had been sick with any colds and no sign of any developmental delays. She saw the pediatrician for all of her check-ups. At the 6 month appointment, the pediatrician noticed she had delayed head growth. The circumference of her head was in the… read more
I first noticed a ridge on the left side of Bella’s skull, above her forehead, when she was a few days old. Our pediatrician said not to worry as most infants’ heads are irregularly shaped. I took Bella back to the pediatrician when she was 10 days old because her breathing was abnormal. Although the… read more
Gage was diagnosed when he was two and a half months old (May 2006) and his first surgery at 6 months and two weeks. He did very good during his surgery and only needing two blood transfusions and one plasma transfusion. Although he had swelling (both eyes were swollen shut for three day) he didn’t… read more
We welcomed our third child, Max, in to the world on Friday, July 22, 2011. From the moment Max was born we knew he was going to be a very pleasant baby. Even though he was a full-term baby, he was a little guy weighing in at only 6 lbs, 5 oz. and was 17… read more
Ellasyn was born May 11, 2011 and she was every bit of perfection I had dreamed of. She was born the day before her due date, and only weighed 5.12 lb! We couldn’t believe how small she was 🙂 I delivered via c-section and everything checked out perfectly with her and I, so we left… read more
Hi everyone, My name is Natali. I am 16 years old and I have Pfeiffer Syndrome type II (later changed to Jackson-Weiss Syndrome) as well as multi-suture craniosynostosis. My journey with cranio began at birth. I will share it here and I will try not to bore you all. The day I was born no… read more
We welcomed our beautiful baby boy, Jonah, into the world on December 13, 2011. He was 3 weeks early and arrived by C-section. About 12 hours after his birth, the on-call pediatrician felt a ridge on his head. She said it was most likely just an overlap of bones because of a difficult delivery, but… read more
On August 20, 2011, we welcomed into our family a beautiful baby girl named Valerie. She weighed 5 lbs. 4 oz. and was 18 3/4 inches long. She was born 4 weeks early because of low fluid. On Sept 20th, I took her for her 1 month check up and all went well except her… read more
My son Matthew had his head surgery on February 14th, 2012. He had a head deformity called sagittal craniosynostosis. He did awesome and we stayed in the hospital for 3 days. He was in the top 1% that didn’t swell or did not have a bad reaction to the surgery. You can barely see his… read more
