We are fortunate enough to live in Boston, MA and we were able to go to Children’s Hospital. On 4/7/15 Caroline had a cranioectomy and a frontal orbital advancement. She had been diagnosed with uni-lateral craniosynostosis. The nursing staff LOVED the prayer chain and although you cannot see it in the pictures, we did have… read more
Our sweet baby boy, Gibson Robert Lewis, was born on November 12th, 2014. The pregnancy, labor and birth all went pretty smooth. He was born naturally and was three weeks early. He weighed 7 pounds and 4 ounces. Gibson wanted to come out 5 weeks early, but I was put on bed rest. He’s our… read more
My son was born with sagittal, bilateral lambdoid craniosynostosis, (nicknamed the Mercedes pattern). I knew immediately when he was born something was wrong. Luckily my doctor listened and we began researching. My son was diagnosed at one month in age and had a full cranial vault reconstruction at 4 months at Primary Childrens Hospital in… read more
During a sonogram at 36 weeks the doctors told me Jayla’s head was shaped long and skinny but assumed it was from positioning in the birth canal for too long and she would grow out of it after birth. Jayla was born August 11, 2014. She was 8 days late weighing 8 lbs & 20… read more
Addison was born with a very narrow, long head shape. Around 6 weeks old we started searching for reasons why her little head seemed to protrude outwards posteriorly and why her forehead seemed pinched at the top. What we found was ‘Craniosynostosis’. By comparing Addie’s picture to those we found online, we instantly knew she… read more
Ayden was born 9-3-14 via c-section he is my third and last baby. When he was born you could tell his head was an odd shape but I thought it was just from the way he laid in my belly or when the OB was pulling him out. The pediatric doctors at the hospital told… read more
Our son, Jacob was born August 2014. From 20 weeks gestation we were aware that he was going to be a single umbilical artery baby, so we were closely monitored for any heart or kidney issues and had monthly ultrasounds to keep track of his growth. Later in the pregnancy, we were told his head… read more
Noah seemed to be your typical healthy baby. There were times during his first year of life I thought his head shape was odd. However, I watched the doctor run her fingers over his skull to feel sutures, so I never mentioned anything. We figured that was just Noah’s head shape. He was perfect to… read more
Bracie Helen Ruth Hancock was born June 9, 2014 at 39 weeks. She was born healthy weighing in at 8 pounds and 2 ounces and was 20.5 inches long. At her 6 weeks checkup, her pediatrician noticed her soft spot was very small. She sent us to a plastic surgeon who specializes in cranio facial… read more
Andrew was born on March 29, 2014 via C-section after hours in labor with hardly any progression, also I was coming up on 36 hours after my water broke and the doctor was concerned about the risk of infection. He was our first child and I was so utterly exhausted from labor and delivery that… read more
Audrianna is my 3rd child. I have a 9 year old boy and 4 year old girl. So when I found out we were going to have a 3rd baby, I expected it to be easy! I already had two… plus I was older. I was so confident this would be a breeze. We had… read more
Camden Isak was born on August 28, 2013, to a waiting room full of excited family! While labor was as typical as it can get, the next few hours were a time of confusion and worry. Camden was born with a fever and elevated respirations, and they immediately had to take him to the NICU… read more
