Brysen – Sagittal

I took Brysen in when he was a week and a half old to get circumcised, well the doctor wanted to look him over real good before doing the circumcision.. he told me that he was a perfectly healthy baby & i had interrupted him and asked “what are the dents on the side of… read more

Alice – Sagittal

We had discovered that Alice had craniosynostosis when she was 3 months old and it was unexpected ( she is 5 month now)… We went to a regular pediatrician appointment because Alice was suffering a lot with cramps, by the way, it was our first appointment with this doctor. So we decided to look for other… read more

Kenneth – Sagittal

After my son Kenneth Oliver Helgeson was born, I noticed right away his head was oddly shaped. Knowing that some babies come out with odd shaped heads, I decided not to look like some crazy mom and told myself that I’d give it the 24 hrs they say a babies head goes to normal shape.… read more

Amelia – Bi-Coronal & Saethre-Chotzen

When Amelia was born, doctors noticed a large fontanelle and although they said they didn’t think anything was wrong, they referred us to genetics. I thought her head just looked funny because babies usually do when born naturally. Sure enough, a CT scan at one week confirmed bicoronal craniosynostosis and further DNA testing confirmed Saethre-Chotzen… read more

Luke – Sagittal

I went in for a scheduled C-section with my third child on August 4th, 2016.  This was both my first C-section and my first son.  I was absolutely elated, even after a hard delivery where I hemorrhaged and required blood transfusions (probably related to the placenta previa that drove us to have a c-section in… read more

Kamden – Metopic

My son Kamden was born 04/30/15 at 38 weeks. He was 8lb 1oz and 19 inches long. We had a few scares during the pregnancy due to me having type 1 diabetes, but otherwise it was a normal pregnancy with a normal delivery. I knew right when I placed him on my chest that something… read more


Our son, Heath, was born on 10/16/15, a healthy 8 lb baby.  Right after delivery while taking him all in, studying every feature, I noticed a small indentation on his forehead, and a somewhat bulgy eye on the same side.  Everyone noticed it and chalked it up to be from passing through the birth canal… read more

Michael – Metopic

When my son Michael was born he was absolutely perfect but we did notice he had a prominent forehead. The nurses told us it was from me pushing for over 3 hours and he was stuck in the birth canal. They continued to tell us not to worry and it would shape back to normal.… read more

Colins – Metopic

Colin’s doctor mentioned to us that he may have craniosynostosis when he was around 4 weeks old, but that we should just keep an eye on the shape of his head. After waiting a few more weeks his diagnosis was confirmed with x-rays and then a CT scan. He had metopic craniosynostosis. My Husband and… read more

Sarah – Bi-Coronal

Sarah was born in July 2012, healthy, perfect, and loved by her two big sisters. We commented on her tall forehead but thought nothing odd of it. At her 6 week check up, the doctor could not feel her soft spot and said her head measured small. “It’s probably nothing,” she said, “but I am… read more

Vismita – Coronal

Our daughter Vismita was born on 21 December 2014. After trying many years without success, she is an angel to our lives. She was born full term, through c-section, healthy and everything went well until a week. I found her forehead and eyes were asymmetrical. Her left forehead was slightly bulged than the right. I… read more

Amelia – Metopic

Amelia’s pediatrician first noticed a lack of a soft spot on the top of her head at her 4 month check up. So we were sent to a neurosurgeon who confirmed what we had already thought, metopic craniosynostosis. We were devastated but immediately started to do some research and felt so much more at ease… read more