Briggs – Sagittal

image (18)First I would like to say thank you to all of the families that shared their stories. They helped me when I was scared and worried. You all are strong individuals and have strong babies.

Here’s our story… Briggs was born on April 17, 2014, a healthy 8lbs 6oz. He was born an emergency C-section. Everything went well and we were discharged 2 days later.

About a week after bringing Briggs home from the hospital I noticed ridge on the back of his head and his head was still somewhat of a cone shape in the back. I just figured because he was in the birth canal it would straighten itself out over time. Within the next month his head seemed to be getting longer and longer (like a football). I started to get concerned. So where did I go… the internet. I remember searching “odd shaped heads” and so many thing popped up. I stumbled upon Cranio Care Bears and saw a few babies with the same shaped head as Briggs. I continued my research because now I had a name of what could be wrong with my son’s head.

I went to the pediatrician and he referred us to Cranial Technologies for a DOC Band. They did a series of imaging photos and gave me the news that the DOC band would not help my son. They told me I needed to find a neurologist and he would need surgery to correct this. I remember feeling numb and knew I had to stay strong for my son. The following week we saw Dr. Singh (plastic surgeon) and Dr. Shafron (neurosurgeon). They knew exactly what was wrong with my son without having to do a CT Scan. He was diagnosed with Sagittal Synostosis on June 17, 2014.

My strong baby boy went in for Endoscopic Craniosynostosis Repair on July 21, 2014 at Phoenix Children’s Hospital. Surgery took about 3 hours (longest 3 hours of my life). When I finally got to see Briggs I couldn’t believe the difference. I knew he was my baby but his face changed so much. We spent 2 1/2 days in the hospital. Briggs is doing well and healing fast. We will be receiving his DOC band this week and should have to wear it for about 2-3 months. We can’t wait to see the final results.

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