Mina – Crouzon / Chiari
Mina was diagnosed right after birth with Crouzon syndrome. Her head was very small, all sutures were closed accept the fontanel. She… read more
Multi-Sutures/Syndome/Rare
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Archie
Back in May 2010 we welcomed our gorgeous son, Archie into the world. He looked perfect in every way. Slowly as the… read more
Ari
When our little lion king was born we noticed his forehead was very flat on one side and were told it was… read more
Brynnli
My daughter Brynnli was born two months premature by emergency cesarean section because I developed severe sudden onset pre-eclampsia. I went to… read more
Brayden
Brayden Jackson born on July 1st 2017, along with his twin brother Greysen Jackson, They were born on Canada day 150! We… read more
Cassidy – Frontonasal Dysplasia
Cassidy was born 9 days late via c section on 6/25/2016. I had gone in to be induced when an ultrasound revealed… read more
Bellamy
On April 28th 2017, our beautiful daughter Bellamy was born. During my pregnancy when the doctors were reviewing my ultrasounds they noticed… read more
Bentley
Bentley graced us with his presence on March 29, 2016. After hours of pushing without any progress, I was questioned if I would like… read more
Nate
Our son Nate was born in March 2013 with a large lump on his skull above his left eye and no palpable… read more
Natali
Hi everyone, My name is Natali. I am 16 years old and I have Pfeiffer Syndrome type II (later changed to Jackson-Weiss… read more
Bryndal
Bryndal F. (17 Months old) Multiple Suture Synostosis (Coronal & Lambdoid), Chiari Malformation, & 6P Duplication Our daughter, Bryndal, was born on… read more
Madalyn
On Wednesday, May 25, 2005, we knew as first time parents our world was about to change. We had no idea just… read more