Victoria
Victoria was born on September 20th, 2013, the day of the 4th attempt to induce labor. When she finally joined us, she had… read more
Success Stories
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Ben
I am writing Ben’s story in the hopes that it will reassure some families out there who have to go through the… read more
Riley
Hello, I’m Riley Adams. I am 20 years old and live in a small town in Wyoming. When I was 9 months… read more
Cole
So it is Thursday July 10th and I am sitting in the ICU with my amazing 3 1/2 month old son Cole.… read more
Simeon
The first time we heard that big scary word, craniosynostosis, it was in Spanish. We were living in South America when our… read more
Cole
At Cole’s 2 month check-up the pediatrician had a difficult time locating his soft spot. She asked another doctor to come for a… read more
Briggs
First I would like to say thank you to all of the families that shared their stories. They helped me when I… read more
Jana Marie
Jana Marie Raak was born on June 26, 2013 at 10:47pm. She was 10 days early, born naturally and without complications. 7lbs,… read more
Emilio
As our son turns one, we finally thought we’d share our story in hopes it brings more Awareness of craniosynostosis and helps… read more
Nikhil
Read the full story and blog here: http://nikhilscraniojourney.weebly.com/story/category/all Our Cranio journey started on October 1st 2012 during a followup appointment for Nikhil at… read more
Dyllan
Our daughter Dyllan was born with no signs of Craniosynostosis. It wasn’t until she was 6 months old that I felt her… read more
Ella
This is my daughter Ella who is now 2 1/2 years old. When she was 4 mo old, we noticed a “knot”… read more