Dyllan – Coronal & Lambdoid

dyllan21Our daughter Dyllan was born with no signs of Craniosynostosis. It wasn’t until she was 6 months old that I felt her soft spot was bulging. After several ultrasounds and no answers I demanded that a CT scan be done to get to the bottom of what was happening. Finally, a week before her first birthday she was diagnosed with Craniosynostosis. It was terrifying to not know what it was or what to do next. Dyllan had coronal and lambdoid Craniosynostosis. We found out a couple of weeks later that she would need pretty radical skull surgery. We were so blessed to have connected to other families that have gone through this same scary diagnosis. Cranio Care Bears was a great source of information and support. Dyllan had her surgery on August 31, 2012. It has now been two years since her surgery and she is doing amazingly. We were told original that she might need to have another surgery on her skull, but we have been told since that she most likely won’t have to. We are so blessed that she is an amazing little three year old with a big personality. Her resiliency has been amazing. Thank you again Cranio Care Bears for the support, the wonderful care package and all that you do for our little ones!

dyllan