Cole – Sagittal

image(4)So it is Thursday July 10th and I am sitting in the ICU with my amazing 3 1/2 month old son Cole. Today Cole underwent Endoscopic surgery for Sagittal Craniosynostosis. We only found out what Cole’s condition was 6 weeks ago. He was 2 months and after continuously questioning his pediatrician as to the shape of his head, we were finally referred to a Neurosurgeon. It is amazing how one doctor had no idea and another knew instantly. While that is nor here nor there, I was relieved and petrified at the same time. The last few weeks were full of sleepless nights and major anxiety. While we are not out of the woods just yet Cole is a fighter and I’m praying a year from now i will look back and smile at how strong my Cranio Warrior was. Cole will wear a helmet for at least a year which I plan to deck out and enhance his personality with. To all those parents whose guts tell them something is not right, ASK and continue to ask until you have the answers. We are the best advocates for our children and we do know best!

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