Isaac’s Journey with Metopic Craniosynostosis can be read on this blog – http://shirey-family.blogspot.com/2011/06/isaacs-journey-and-gods-perfect-healing.html
Below are all of my blog posts related to our journey with our son Isaac through his diagnosis of metopic craniosynostosis and the surgery that followed. We pray that you will find encouragement, advice, and hope through our walk and that our experience will somehow help you with yours! May God’s mercy and grace guide you!
News of his diagnosis
http://shirey-family.blogspot.com/2010/05/journey-through-fire.html
An update on the support we received/ some research
http://shirey-family.blogspot.com/2010/06/outpouring-of-support.html
CT Scan and first opinion
http://shirey-family.blogspot.com/2010/06/update-on-isaac.html
Second opinion
http://shirey-family.blogspot.com/2010/06/update-on-isaac_22.html
Fear and faith – more appointments
http://shirey-family.blogspot.com/2010/07/fear-and-faith.html
Surgery date scheduled
http://shirey-family.blogspot.com/2010/08/beautiful-mess.html
Ways to pray – spreading the word to friends and family
http://shirey-family.blogspot.com/2010/08/ways-to-pray.html
Intercessory prayer
http://shirey-family.blogspot.com/2010/09/power-of-intercessory-prayer.html
Pre-op appointment number 1
http://shirey-family.blogspot.com/2010/09/update-from-tuesday.html
Pre-op appointment number 2 and encouragement
http://shirey-family.blogspot.com/2010/10/pain-with-purpose.html
Worst day ever! Surgery post-poned
http://shirey-family.blogspot.com/2010/10/surgery-postponed.html
Go to a hospital as good as Arnold Palmer Children’s Hospital
http://shirey-family.blogspot.com/2010/10/watching-god-work.html
New Surgery date
http://shirey-family.blogspot.com/2010/10/wow-new-surgery-date.html
Day before surgery
http://shirey-family.blogspot.com/2010/10/i-will-choose.html
Surgery morning
http://shirey-family.blogspot.com/2010/10/first-wait-is-over.html
Surgery started
http://shirey-family.blogspot.com/2010/10/surgery-has-started.html
Update from nurses
http://shirey-family.blogspot.com/2010/10/hes-almost-done.html
Surgery is over!
http://shirey-family.blogspot.com/2010/10/surgery-is-over.html
First update after surgery with recovery photos
http://shirey-family.blogspot.com/2010/10/update-and-pictures.html
PICU -day 2
http://shirey-family.blogspot.com/2010/10/picu-day-2.html
Day 2- evening -praises
http://shirey-family.blogspot.com/2010/10/purpose-over-pain.html
Day 3 – the worst is over
http://shirey-family.blogspot.com/2010/10/picu-day-3-worst-is-over.html
Day 3 after a bath
http://shirey-family.blogspot.com/2010/10/baby-fresh.html
Peeking eyes
http://shirey-family.blogspot.com/2010/10/hope-small-smile-peeking-eyes.html
Eyes open – light at the end of the tunnel
http://shirey-family.blogspot.com/2010/10/hello-blue-eyes.html
Recovering at home
http://shirey-family.blogspot.com/2010/10/road-to-recovery.html
One week after the surgery
http://shirey-family.blogspot.com/2010/10/one-week-later.html
Thanking the grandparents
http://shirey-family.blogspot.com/2010/10/open-letter-to-mom-and-dad.html
As of June 13, 2011, Isaac is a perfectly healthy 14-month old and you would have a very difficult time knowing he had major reconstructive surgery by looking at him. His 6 month post-op appointment was uneventful and the doctor called him a “perfect case.” I call it a blessing from a perfect God.