Isaac – Metopic


Isaac’s Journey with Metopic Craniosynostosis can be read on this blog – http://shirey-family.blogspot.com/2011/06/isaacs-journey-and-gods-perfect-healing.html

Below are all of my blog posts related to our journey with our son Isaac through his diagnosis of metopic craniosynostosis and the surgery that followed. We pray that you will find encouragement, advice, and hope through our walk and that our experience will somehow help you with yours! May God’s mercy and grace guide you!

News of his diagnosis

http://shirey-family.blogspot.com/2010/05/journey-through-fire.html

An update on the support we received/ some research
http://shirey-family.blogspot.com/2010/06/outpouring-of-support.html

CT Scan and first opinion
http://shirey-family.blogspot.com/2010/06/update-on-isaac.html

Second opinion
http://shirey-family.blogspot.com/2010/06/update-on-isaac_22.html

Fear and faith – more appointments
http://shirey-family.blogspot.com/2010/07/fear-and-faith.html

Surgery date scheduled
http://shirey-family.blogspot.com/2010/08/beautiful-mess.html

Ways to pray – spreading the word to friends and family
http://shirey-family.blogspot.com/2010/08/ways-to-pray.html

Intercessory prayer
http://shirey-family.blogspot.com/2010/09/power-of-intercessory-prayer.html

Pre-op appointment number 1
http://shirey-family.blogspot.com/2010/09/update-from-tuesday.html

Pre-op appointment number 2 and encouragement
http://shirey-family.blogspot.com/2010/10/pain-with-purpose.html

Worst day ever! Surgery post-poned
http://shirey-family.blogspot.com/2010/10/surgery-postponed.html

Go to a hospital as good as Arnold Palmer Children’s Hospital
http://shirey-family.blogspot.com/2010/10/watching-god-work.html

New Surgery date
http://shirey-family.blogspot.com/2010/10/wow-new-surgery-date.html

Day before surgery
http://shirey-family.blogspot.com/2010/10/i-will-choose.html

Surgery morning
http://shirey-family.blogspot.com/2010/10/first-wait-is-over.html

Surgery started
http://shirey-family.blogspot.com/2010/10/surgery-has-started.html

Update from nurses
http://shirey-family.blogspot.com/2010/10/hes-almost-done.html

Surgery is over!
http://shirey-family.blogspot.com/2010/10/surgery-is-over.html

First update after surgery with recovery photos
http://shirey-family.blogspot.com/2010/10/update-and-pictures.html

PICU -day 2
http://shirey-family.blogspot.com/2010/10/picu-day-2.html

Day 2- evening -praises
http://shirey-family.blogspot.com/2010/10/purpose-over-pain.html

Day 3 – the worst is over
http://shirey-family.blogspot.com/2010/10/picu-day-3-worst-is-over.html

Day 3 after a bath
http://shirey-family.blogspot.com/2010/10/baby-fresh.html

Peeking eyes
http://shirey-family.blogspot.com/2010/10/hope-small-smile-peeking-eyes.html

Eyes open – light at the end of the tunnel
http://shirey-family.blogspot.com/2010/10/hello-blue-eyes.html

Recovering at home
http://shirey-family.blogspot.com/2010/10/road-to-recovery.html

One week after the surgery
http://shirey-family.blogspot.com/2010/10/one-week-later.html

Thanking the grandparents
http://shirey-family.blogspot.com/2010/10/open-letter-to-mom-and-dad.html

As of June 13, 2011, Isaac is a perfectly healthy 14-month old and you would have a very difficult time knowing he had major reconstructive surgery by looking at him. His 6 month post-op appointment was uneventful and the doctor called him a “perfect case.” I call it a blessing from a perfect God.