Annabelle – Metopic


Annabelle was diagnosed with metopic cranisynostosis at around 2 months of age. I am fairly certain that it had been fused since birth. Her pediatrician noticed her forehead at her 2 week checkup and said we would need to keep an eye on it. She was referred to a pediatric neurosurgeon at her 1 month checkup. At 2 months, we saw the neurosurgeon and had a CT scan done. She was diagnosed the same day and we were told that surgery was the only way to correct the issue. I was devastated and cried the whole way home. We were referred to a pediatric craniofacial surgeon and her surgery was scheduled for May 4, 2011. I was a nervous wreck the week before her surgery. She was scheduled to be Dr Czerwinski’s first surgery of the day and thankfully nothing came up to push us back. The hardest part for me was when I saw the nurse that would take her from me come in the room. I knew the second I saw her that she was the one who would take my sweet baby girl away and started crying as soon as she started talking to us. Thankfully, AJ had fallen asleep while we were waiting for them to come take her. She stayed asleep as I handed her over, and they said she didn’t wake up, so she never knew she was out of my arms. That made me feel better, knowing she never had to see all of those new, scary people. Her surgery lasted 8 hours on the dot. The first time I saw her afterwards, I knew we had done the right thing even though she looked completely different. I had grown so used to her the way she was before. I thought she was just the cutest baby ever! She had such facial expressions that I had never seen any other baby have. It took a while for those to come back, but they eventually did. We were only in the hospital for 3 days! I couldn’t believe they were letting us go home so soon! Her eyes opened on Mothers’ Day (day 5)! I cried! I was surprised at how quickly the swelling started going down after we got home. I think that being home helped her heal faster than the Dr’s were expecting. She is the sweetest baby ever. She is probably the happiest baby I have ever seen. AJ came through her surgery with flying colors! It is hard to look back and think about what she went through, but in the end, it was worth the heart ache. She is now almost 5 months post-op. She just started walking and tries to drag us all around the house to help her!